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- Chronically Fabulous: Living a Full Life, Despite a Chronic Illness
- 8 facts you need to know about lupus — and how you can help
ARRC aims to develop and continues to undertake studies that are of a high quality and have the potential for tangible returns to people living with autoimmune disease through improved illness management and up-to-date evidence based health information and education programs. An integral part of our research program is that project outcomes often inform us of the most useful direction to focus future ARRC services and research directions. An example of this is the EDOLF study, which identified that there was an unmet patient need for specialised psychological and cognitive improvement support and nutritional needs.
This led to the introduction of our psychology service and targeted research projects. Research findings have also informed clinical management reinforcing the vital component research has in the fight to better understand disease processes and management. ARRC is actively working towards this goal. An important function of ARRC is to increase public awareness of wide spectrum of autoimmune diseases and their life burden. Given their impact upon community health, autoimmune diseases do not receive the attention they deserve.
Despite Lupus : How to Live Well with a Chronic Illness - dersmompozharspimp.ml
Through specific awareness campaigns, media, public and corporate presentations, and through seeking a greater funding of health care programs, ARRC is able to raise the profile of these diseases and the health needs of the individual autoimmune person. Awareness also enables ARRC to have an active role in countering web-based disinformation including some alarmist information about poor survival rates. In addition, by being an active advocate for autoimmune diseases ARRC is able to lobby for specific resources dedicated to autoimmune disease chronic disease management programs, improved treatments and research.
Our centre aims to bring equality into health service access for people with chronic diseases of an autoimmune nature by bridging current service and support gaps. It does this by:. ARRC and its services are financed by donations, fundraisers, and specific grants from philanthropic foundations and community arms of corporations.
Despite sitting with in a hospital precinct ARRC does not receive any Government sponsorship or funding. The location of ARRC on a hospital precinct provides the benefit of being able to access and network with specialty departments of medicine and allied health to provide the best support for those in need. ARRC is an incorporated charity Not for Profit Charity with Deductible Gift recipient status, and like many charities that do amazing work supporting research and people living with illness we need to source funds to continue to meet the needs of our often forgotten autoimmune community.
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If you can help us to continue to build bridges and stop many falling through the service cracks please contact us. Help us make a change in the world of autoimmune disease, together we can help each other live well with illness as no-one is immune to autoimmunity. During October we are honouring those living with Lupus. One of our valued members is also a brave fire fighter! Firemans Calendar To order your Australian Fire Fighter calendar, please phone or email arrc autoimmune. Systemic lupus SLE is the most common form of lupus, which can affect all parts of the body.
While DILE has similar symptoms to SLE, the former's symptoms will typically subside within weeks after patients stop taking the responsible drug.
LupusAwarenessMonth pic. Wamsley aedubs2 May 6, Lupus is not a fatal disease on its own, but the effects it has on one's body can be life-threatening.
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People who have lupus are at risk for many other medical illnesses, including cardiovascular disease, poor mental health, renal disease, blood clotting, stroke, heart failure and high blood pressure. The potential for these complications is a source of fear for many of those who live with lupus. I'm scared that I won't be strong enough to fight this disease and win.
If you want to make a difference in the lives of those who live with and are at risk for lupus, here are some initial things you can do. Follow LupusChat to learn about the experiences of those with lupus. So stay tuned for upcoming topics.
Chronically Fabulous: Living a Full Life, Despite a Chronic Illness
This platform is one of the online communities that Tiffany Peterson created "to provide lupus patients with the support, resources, and community that I never had when I discovered I had lupus. Although it's primarily for lupus patients, LupusChat welcomes caregivers, friends, family, and all those looking to learn to join the conversation. It's LupusAwarenessMonth! Share your pics of how you wear purple to spread lupus awareness! Use GetYourPurpleOn pic.
8 facts you need to know about lupus — and how you can help
It may not seem like much, but considering the mystery that surrounds lupus, spreading awareness on social media can be extremely beneficial to the cause. Wear purple nail polish or clothes the official color for lupus awareness , throw up your "L" and share a video to your followers. Although having never shown symptoms, this American singer, songwriter, and actress tested borderline positive for lupus in But I have to take good care of myself.
She went on to note that her aunt died of lupus. Pretty much when you have lupus you feel like you have the flu every day. But some days you get through it.
In , Braxton appeared on the Dr. Oz show to discuss living with lupus. She continues to be monitored regularly while still recording and performing music. Diagnosed in , Nick Cannon, a multitalented American rapper, actor, comedian, director, screenwriter, producer, and entrepreneur, first experienced severe symptoms of lupus, including kidney failure and blood clots in his lung.
Cannon stresses how important diet and taking other precautionary measures are to be able to forestall flare-ups. Diagnosed at age 46 with lupus myelitis, a rare form of lupus affecting the spinal cord, this comedic actress first showed signs of lupus when struggling to climb a flight of stairs. Trick Daddy, an American rapper, actor, and producer, was diagnosed years ago with discoid lupus, although he no longer takes Western medicine to treat it.
This Gold-medal-winning American Olympic soccer player was diagnosed in at age 30 while playing for the U. National Team. During this time, she began showing repeated symptoms of fatigue, joint pain, and muscle soreness. She announced her diagnosis publically in and began working with the Lupus Foundation of America to spread awareness of the disease.
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The medicine she currently takes helps to control the number of potential flare-ups, as well as the amount of inflammation in her body. I hope this is where I have inspired people. In , wanting to have a baby, she worked closely with her rheumatologist on a plan to attempt to have a child after two years of maintaining her lupus in a controlled state.